Patient and Public Involvement, Engagement and Public Awareness and Participation are important dimensions of PPIE. The post holder will direct and develop all aspects of PPIE including these key dimensions.
This requires building, developing and maintaining excellent relationships with diverse groups of patients and carers, patient and carer organisations, third sector organisations, faith organisations, and other stakeholders in the local and national health and social care economy.
More specifically, the Ageing & Acute Care PPIE Lead will facilitate and coordinate the following activities :
To ensure patients and the public have meaningful and rewarding involvement in the work of the local and national ageing and acute care research communities, including PIONEER and UK SPINE
To communicate, deliver events, collaborations and other activities to promote patient and public engagement, with special emphasis on improving the public understanding of science of applied health research.
This will also include creating and maintaining regional and national PPIE networks and implementing and contributing to the recommendations from the NIHR strategic review of PPI in research (Going the Extra Mile), with special emphasis on reaching under-represented community groups.
To communicate and promote awareness of projects being undertaken by research initiatives in the local and national health economy to improve patient and public participation to research studies, whether these are fundamental science or more applied research.
The post holder will be a core member of the PIONEER and UK SPINE central management teams. The post holder will guide and mentor other staff involved in patient and public involvement, engagement and participation activities and contribute to activities in the wider community and academic environments where this delivers demonstrable benefit to the local and national research initiatives / infrastructure.
They will also be a key member of the Research Delivery team within the College of Medical & Dental Sciences, which oversees a number of high-profile programmes, including the Health Data Research UK Midlands Site, MRC-Versus Arthritis Centre for Musculoskeletal Ageing Research, and Arthritis Therapy Acceleration Programme.
To be responsible and accountable for public involvement activities in PIONEER and UK SPINE KE
To establish, provide the main point of specialist contact and to manage a diverse group of PPI Advisors who will be recruited to serve as lay advisors to relevant projects and programmes.
To ensure that any needs are identified early and to exercise judgement to ensure that issues (some of which may be challenging and new) are resolved quickly and effectively.
To organise and develop the strategy of PIONEER PPI Committee - a Committee of PPI Advisors feeding into the management / governance structure of PIONEER, working with the named external lead.
To ensure Committee activities align to the strategic direction of PIONEER and national strategies for health data, and where relevant also support the work of UK SPINE KE.
To design and deliver learning and development activities related to PPIE drawing on specialist knowledge and expertise.
Activities should be tailored to the audience, ensuring that participants are motivated, enthused and equipped with relevant skills to involve the public / be involved in research.
To use the NIHR INVOLVE Standards or equivalent to reflect on and enhance all practices (e.g. producing communication bulletins / newsletters, evaluation of impact) relating to PPI.
To use problem-solving skills and find innovative solutions to obstacles preventing effective public involvement in research.
To communicate effectively with public contributors using appropriate and accessible formats to promote patient and public engagement, with special emphasis on improving the public understanding of science.
To create and maintain regional and national PPIE networks and promote and implement the recommendations from the NIHR strategic review of PPI in research, with special emphasis on reaching under-represented community groups.
To build, develop and maintain relationships with diverse groups of patients and carers, patient and carer organisations, third sector organisations, faith organisations, and other stakeholders in the local health and social care economy in order to realise the PIONEER ambition deliver direct patient benefit through health data as well as the UK SPINE KE ambitions around connected knowledge exchange between diverse audiences in the field of ageing. .
To build, develop and maintain relationships with members of the PIONEER team within the Universities of Birmingham, Warwick and University Hospitals Birmingham, as well as a range of partner NHS Trusts and within other local and national research initiatives relating to health data.
To do similar for the UK SPINE KE teams in the Universities of Oxford, Dundee, Francis Crick Institute and the Medicines Discovery Catapult.
To build, develop and maintain relationships with academic and administrative / managerial staff involved in PPI and public engagement activities, at all partner universities and NHS Trusts.
Where relevant, to provide mentorship to develop capacity on public involvement in research.
To develop new national and international links and collaborations where this delivers demonstrable benefit to the participating research initiatives, including PIONEER and UK SPINE KE.
To lead on PIONEER and UK SPINE KE PPIE-related activities and collaborate with other national PPI organisations such as NIHR INVOLVE and Cochrane Collaboration.
To ensure PIONEER and UK SPINE KE are beacons of good practice in all public involvement and engagement arenas.
To promote widespread awareness of projects being undertaken by local research initiatives to improve patient and public participation to studies through events and activities as well as the development of webpages, through the PIONEER and HDR UK communications channels and through other social media such as Twitter, as examples.
To disseminate strategic and relevant information to researchers in accessible formats (presentations, blog articles) and ensure benefits of PPIE are published to national and international audiences.
To have a detailed and authoritative knowledge of developments in PPIE and to disseminate this information to members of the various research initiatives as deemed appropriate.
Ad-hoc support for any other projects / duties as directed by your Line Manager and the Directors of the PIONEER and UK SPINE KE programmes.
Specialist knowledge of national public involvement strategy and guidance.
Authoritative and detailed understanding of PPIE in health and social care organisations.
Detailed knowledge and understanding of diversity in local communities.
Detailed and specialist working knowledge of PPIE in research-active organisations and in applied health research activities and initiatives.
Ability to plan and deliver operational plans for own area.
Strong interpersonal skills and proven ability to work with patients and the public, healthcare professionals and NHS management, academics and researchers.
Ability to communicate complex information both orally and in writing, both internally to colleagues and externally to a wide range of audiences.
Ability to manage the planning, management and delivery of projects involving multiple agencies and individuals.
Ability to manage time effectively, prioritise workload and deliver results consistently without supervision.
Ability to prepare and deliver presentations and reports to a high standard without guidance.
High level IT skills, particularly in the use of MS Office and Web applications.
Impeccable attention to detail.
Ability and willingness to travel around the West Midlands area and to national meetings as required.
Education and qualifications :
A higher degree in relevant health or social science or related subject.
Significant experience of supporting patients or the public to engage in research
Significant experience of engagement the public in the work of other organisations such as third sector organisations and charities.
Experience of high level project management.
Experience of working with diverse groups of people.
Personal Attributes :
Ability to work independently using own initiative.
Highly motivated, with the ability to influence and inspire others.
Flexible approach to working and a desire to develop knowledge.
Informal enquires to Claire Potter at c.potter bham.ac.uk
The University is committed to safeguarding and we promote safe recruitment practice, therefore all associated pre-employment checks will be undertaken before any appointment is confirmed.
We value diversity at The University of Birmingham and welcome applications from all sections of the community’
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